Hayley's kidney function is at 10 percent. Mayo Clinic just called and said they are going to set her up for a transplant. We have spent 1000.s of dollars on trying to get the kidneys to kick in and heal but the function is not improving. One doctor said that the kidneys have improved but the brain is not sending the message for the kidneys to kick in.
When Hayley was born, the doctor used a suction device to help her be born and we believe it harmed the pituitary gland in the brain. This is the place that Wegener's disease originates according to some experts. So we are not sure what else to do at this point except go with the transplant. We know that the brain can heal but there is not a lot of knowledge about it.
Hayley continues to have a great attitude about all that she is going through.