When I took Hayley to the Doctor last week he looked at her last lab results and then with much emotion said to me, "Why doesn't she have any iron?" I sheepishly said "I don't know". He obviously was upset. They dripped 2 bags of iron into her in the hospital but the concern is growing as to why she is not retaining it. But at least they let her leave the hospital. We were grateful for that.
She is to see a GI doctor to see if he can figure out what is wrong. We also start the training in dialysis this week and will have 4 long days of information and doctor appointments and training at Mayo next week. Mayo sent us an agenda with every minute accounted for. They may not be so anxious to get started when they learn that she has no iron. Just a thought.
Life if good and Hayley knows she will be normal and healthy and well some day soon.
Thursday, November 15, 2012
The surgery went well and Hayley is in recovery. We are hoping she will be able to come home tonight but won't know till late tonight. She will now be able to begin dialysis at home in the next 2 weeks. She is going into Mayo just after Thanksgiving to start the long process for transplant. She and her mom will do 4 long days of training and appointments to make the preparations. We will then search for any volunteers for a donated kidney that fit the right criteria. As always Hayley is in good spirits, a little discouraged because she was hoping she would not have to go through this. She knows she will live a normal healthy life and have a family and that gets her through.
Wednesday, November 14, 2012
Hayley was admitted to the hospital again this morning. Her kidney functing is dropping very low. She needs to start dialisis soon. She will have surgery tomorrow morning to put a "port" (not sure what it is called it may be a cathedar) into her stomach that will enable her to do at home dialisis. The surgery is not long. If she does well she can come home tomorrow night. Hayley will need to continue dialisis from here on out until she gets a kidney transplant.