So Good To Be Home

Hayley is home!  The doctor left strict instructions that if she starts to retain water or blood pressure goes up we have to head back in immediately.  We are praying to stay home.

When Hayley was told she could go home she asked me if I thought she could go to the temple today and do some temple work.  She hasn't been out of pjs in 2 weeks and not feeling great from all the steroids and chemo and has multiple bruises and a hole in her neck from the shunt and she wants to get to the temple.  She feels bad that she has missed the last 2 weeks. I don't have as much faith as she does, so we compromised on a drive by. :)  What a gal!

Coming Home!

The Dr. just cleared Hayley to go home sometime today! Woohoo! They want to do dialysis one more time today before they take the shunt out of her neck... She still will have to come back for treatments, but in the mean time she'll be at home... The Dr. gave her a bunch of restrictions to follow while she is at home. Hayley can't be around anyone that is sick because her immune system is down...

Hayley did another round of the Plazmafereza today and was told she has to also do dialysis because her potassium level is high.  She has been eating a lot of potatoes because it sounds good to her. Since they are loaded with potassium we are going to try something else.  Hayley has been trying hard to eat as well as she can to do her part in this process.  She does not eat any refined sugar, and is trying to follow the word of wisdom.


We are hoping she is still on for coming home tomorrow???

Retraction

Dr. Mashood our other Israeli doctor came in and said Hayley can go on Wednesday instead of

Tuesday! Still great news because she was originally going to have to stay another week.

They want to limit visitors because she needs the energy to handle the heavy meds.

Thanks for all your prayers!!!!

Best Day Ever!

Doctor Alam, our Israeli Doctor came in just now and said Hayley will do Chemo today and can go home tomorrow!!!!! We are happy over here!!!!

Kidneys were not so good today and that was discouraging.

Hayley does not like missing her Sunday worrship and appreciated the priesthood bringing her the sacrament. She did her own private study today and came upon the story of the woman with the issue of blood, which she had for 12 years. It was 12 years ago that we now know the Wegeners disease became pronunced with Hayley.

The woman "had suffered many things of many physicians, and had spent all that she had, and was nothing bettered, but rather grew worse,"

She knew if she touched thee Saviors garment she would be healed. The Savior asked for her and said: "Thy faith hath made thee whole".

That is our hope. Hayley has great faith in her Savior. Her Patriarchal blessing tells her that she will have health and strength and longevity of life.

Starting on this Monday April 23, Hayley's immune system will be compromised. She will have to watch what she eats and cannot have flowers in her room. The visits will need to be short and only with those who are very healthy.

She has not done dialysis because her kidneys are functioning. It is very limited, but they are responding.

Hayley wants you all to know that she can feel your prayers. She is planning on a miracle!